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Apert Syndrome
Websites
Medical information including definition, major and related features of the condition, genetics.
http://www.apert.org/apert.htm
About Apert Syndrome and how it has affected the life of a baby boy named TJ and his family.
http://www.califariel.com/tj/index.html
General information about Apert syndrome with photographs of people with the condition. English version follows Swedish text.
http://www.apert.org/sweden/index.htm
Written by her father, this contains biographical detail about living with Apert syndrome.
http://www.apert.org/horning/index.htm
Produced by Alliance of Genetic Support, this includes comprehensive information about the condition, an Apert listserve, newsgroup, links, webring and family homepages.
http://members.tripod.com/~bears_4/aperts.html
Resource for contacts, chat rooms, pen pals and other relevant links.
http://www.familyvillage.wisc.edu/lib_aprt.htm
Written by father of child with Apert syndrome. Contains biographical detail, and links to Apert syndrome stories and support sites.
http://members.aol.com/ApertSyn/index.html
Frequently asked questions and answers on Apert syndrome.
http://www.faces-cranio.org/Disord/Apert.htm
A family support network for people affected by Apert syndrome and other craniofacial disorders.
http://www.apert.org/
BBC story on the discovery that children born of older fathers are at greater risk of developing Apert, and the mechanism behind that risk.
http://news.bbc.co.uk/1/hi/health/3114789.stm