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Websites
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
site exerpt
David Roche Keynote Speaker, Humorist, Performer A friend said mournfully the other day that he'd lived his life like the professor on Gilligan's Island. While he found time to fashion generators out of palm fronds, vaccines out of algae, he never got down to fixing that...Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html
Information and support on acne, including top ten tips, beauty tips and problems.
http://www.stopspots.org/
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org
Moebius Syndrome support, information and resource site.
http://www.moebius1.org
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.Aboutfaceinternational.org
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
http://www.changingfaces.co.uk
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm
Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/
A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FACE.html
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
http://www.newfacefoundation.com
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.faceit.org/
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
http://www.hopkinsmedicine.org/craniofacial/
Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
http://www.crouzonsbridge.org
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org