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Gaucher's
Websites
A description of this disease and who gets it. A number to call for possible free testing.
http://www.gaucherdisease.com/
Information for patients, relatives, doctors and researchers from an independent charity. Over two hundred pages for use by patients and doctors.
http://www.gaucher.org.uk/contents.htm
Information about this international organization and the disease itself.
http://www.EuropeanGaucherAlliance.org
National Institutes of Health Technology Assessment Conference Statement February 27-March 1, 1995. To provide physicians with a responsible assessment of the diagnosis and treatment of Gaucher disease.
http://text.nlm.nih.gov/nih/ta/www/16.html
Information by Dr Ed Wraith about this disease in children.
http://www.gaucher.org.uk/wraith99.htm
Provides clinical evaluations for the diagnosis and treatment of patients with this disease. Information about the disease and the facility.
http://www.gaucherwest.com
Longitudinal, observational program that tracks the health outcomes of routine clinical practice for patients with Gaucher disease.
http://www.gaucherregistry.com
Links to comprehensive treatment centers across the United States.
http://www.gauchertreatmentcenters.com
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_...dical/disorders/gauchers_doc.htm
Provides links to Lysosomal Storage Disorder Treatment Centers, and centers with experience in caring for patients with Gaucher Disease, Fabry Disease, MPS-1 and other LSDs.
http://www.gauchertreatmentcenter.com
Provides clinical evaluations for the diagnosis and treatment of patients with this disease. Information about the disease as well as the facility.
http://www.gauchersoutheast.com
An in depth look at this disease and its causes, the different types, symptoms and treatment.
http://www.ntsad.org/pages/gaucher.htm