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Spinal Muscular Atrophy
Websites
Web site promoting public awareness for spinal muscular atrophy.
http://www.fightsma.com
A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
http://www.smaangels.com
International support group and resource center for this disease, includes current research.
http://www.fsma.org
I am two years old and I have SMA2.
http://www.geocities.com/ianpaul2
A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
http://www.smaangel.com
Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
http://www.geneclinics.org/profiles/sma/index.html
Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
http://www.neuro.wustl.edu/neuromuscular/synmot.html
Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
http://www.fightsma.ca/
A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
http://www.mysunrise.ch/users/af.mast/
Canadian charity supports research into a cure for SMA.
http://www.fsma.org/canada/
Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
http://www.our-sma-angels.com/elizabeth/
Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story.
http://www.emilyswalkforlife.com
Information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/disorders/kennedys/kennedys.htm
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
http://www.our-sma-angels.com
Information on SMA, and the latest updates in research, treatment and funding.
http://www.smafoundation.org
Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
http://www.smafund.org
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
http://www.smasupport.com