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Post Polio Syndrome
Websites
Search or browse this comprehensive listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
http://www.skally.net/ppsc/
Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
http://www.post-polio.org
Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
http://www.skally.net/ppmed/
Formed by polio survivors to provide information and support to polio survivors and their families and to educate the medical community and the general public about post-polio syndrome (PPS).
http://www.geocities.com/HotSprings/4760/
Calendar of non-commercial events concerning post-polio syndrome.
http://www.skally.net/ppsc/event.html
Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
http://www.skally.net/ppsc/und.html
Materials about PPS: including articles, audio tapes, the PPS Computerized Assessment Program.
http://members.aol.com/harvestctr/pps/polio.html
A survey for polio survivors with PPS
http://www.skally.net/pps_survey/
PPS expert lists things to do and not to do.
http://www.skally.net/ppsc/silver2.html
Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
http://gbppa.org
Post-Polio Syndrome information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_...l/disorders/post_polio_short.htm
Medical College of Wisconsin, Living with Post-Polio Syndrome, theories, information and a few links
http://healthlink.mcw.edu/article/996372413.html
A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share from a-z pertaining to their PPS. disability.
http://forums.delphiforums.com/bigcrusher/start
Educates and informs polio survivors, healthcare professionals and family about polio, post-polio syndrome and care in polio vaccination.
http://www.postpoliosupport.com
Information about this British PPS support group. PPS Q&A, publications, library, news and message board.
http://www.britishpolio.org/
Support group. Profile, activities, membership, calendar, photographs, contact information.
http://home.mindspring.com/~polio/
State wide group of Polio survivors organized to assist other survivors.
http://www.ppassmn.org