Offers information, news, newsletters, support, and resources.

Information, mailing list, pictures, and help for new parents.

Features organization background, information about the disorder, fundraising and research details, and news.

A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.

Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.

Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.

Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.

Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.

Mailing list support group for parents, patients, and those interested in learning about disease.