
Top : Health : Conditions and Diseases : Genetic Disorders :
Batten
Websites
Information for parents and families of Battens victims.
http://www.nateyfoundation.org/
Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
http://www.bdfauk.freeserve.co.uk/
Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
http://www.nathansbattle.com
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
http://www.bdsra.org/
Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
http://lrbf.org
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/batten/batten.htm