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Batten

Websites
Information for parents and families of Battens victims.
http://www.nateyfoundation.org/

Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
http://www.bdfauk.freeserve.co.uk/

Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
http://www.nathansbattle.com

BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
http://www.bdsra.org/

Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
http://lrbf.org

Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/batten/batten.htm