This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.

To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.

Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.

A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.

Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.

A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.

A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.

Personal stories of two children fighting Fanconi Anemia.

An informational site for this disorder.

Open mailing list for Diamond Black Fan Anemia sufferers.

Discussion list for fanconi sufferers.

Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.

Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.